Autism is a lifelong condition that can affect how a person communicates with and relates to other people. It can also affect how a person makes sense of the world around them.
There are a number of names and terms that are used to describe autism, such as Asperger's Syndrome, autism spectrum disorder (ASD) or autism spectrum condition (ASC). Some professionals may also refer to autism by different names, such as classic autism or Kanner autism, pervasive developmental disorder (PDD) or high-functioning autism (HFA). Autism Hampshire uses the term autism. The word "spectrum" is used because individuals can be affected in such different ways. While all people with autism share certain difficulties, their condition will affect them in different ways. Some people on the autism spectrum are able to live relatively independent lives, but others may have accompanying learning disabilities and need a lifetime of specialist support. People on the autism spectrum may also experience over or under-sensitivity to sounds, touch, tastes, smells, light or colours.
Asperger's Syndrome is a diagnosis that is given to autistic people who did not have delayed speech development as a child.
Autism is often known as "the hidden disability" as it may not be immediately apparent. Autism is the only disability that has ever had its own parliamentary act - The Autism Act 2009.
Autism is also much more common than most people think. There are over half a million people in the UK on the autism spectrum - that's around 1 in 100 people.
People on the autism spectrum have said that the world, to them, is a mass of people, places and events, which they struggle to make sense of, and which can cause them considerable anxiety. This page on sensory differences from the NAS is very useful.
In particular, understanding and relating to other people, and taking part in everyday family and social life may be harder for them. Other people appear to know, intuitively, how to communicate and interact with each other, and some people on the autism spectrum may wonder why they are 'different'.
People from all nationalities and cultural, religious and social backgrounds can be on the autism spectrum, although it appears to affect more men than women. It is a lifelong condition: children on the autism spectrum grow up to become adults on the autism spectrum.
Autism is one of six main neurological and neurodevelopmental conditions. Together, these represent what is known as neurodivergence, and with neurotypical (no known neurological or neurodvelopmental conditon) come under the heading of neurodiversity.
The characteristics of autism will affect each person in very different ways. It is essential to understand each person's autism individually. A person on the autism spectrum can have any other conditional alongside their autism.
Language and communication: difficulties in recognising and understanding verbal and non-verbal language, such as gestures, facial expressions and tone of voice.
Social Emotion: difficulties with recognising and understanding other people's feelings and managing their own.
Sensory Perception: Many people on the autism spectrum experience some form of sensory sensitivity (hyper) or under-sensitivity (hypo). There are 7 senses - auditory, visual, touch, taste, smell, proprioception and vestibular.
The exact cause of autism is still being investigated. However, research suggests that a combination of factors - genetic and environmental - may account for changes in brain development.
Autism is not caused by a person's upbringing, their social circumstances and is not the fault of the individual with the condition.
A diagnosis is the formal identification of autism, usually by a health professional such as a paediatrician or a psychiatrist. Having a diagnosis is helpful for two reasons:
GPs can refer a person to a specialist who is able to make a diagnosis. Many people are diagnosed as children; their parents and carers can ask GPs for a referral.
Although there is no test for autism, the Autism Quotient is used as part of the diagnostic process. For those over 18, this can be completed online here.
It can also be helpful to have completed the AQ-10 when seeing a doctor about a referral. A score of 6 or above is seen as grounds to refer for diagnosis. There are three different versions:
Autism is not an illness or a disease, that needs 'curing', but a condition that causes differences in communication, social emotion, and sensory processing. However, there are a range of interventions - methods of enabling learning and development - which people may find to be helpful to reduce anxiety.
NICE Clinical guideline [CG142]
Guidelines issued in June 2012 by NICE (www.nice.org.uk/CG142) aim to improve services and care offered to those on the autism spectrum, and Primary care has a vital role to play in this respect. Implementation of the NICE guidelines is an important start in helping those on the autism spectrum who, often, have poor social, health and employment outcomes.
Statistically, autism affects more males than females, but the reasons for this remain unclear. It may be that males are inherently more likely to have autism, or that the way autism presents itself in females makes it less easy to diagnose, or perhaps both are true.
For more information on how autism affects females differently from males, see Women and Girls on the Autism Spectrum.